Top 8 Famous People With Prader Willi Syndrome ( Verified )

Are there famous people with prader willi syndrome? The answer is yes, there are few celebrities with prader-willi syndrome and we are going to mention their names here. First of all, let’s get to know more about the disease, courses and more.

Prader-Willi Syndrome (PWS) is a rare genetic disorder that affects approximately 1 in 10,000 to 30,000 individuals. It is caused by the absence or loss of function of genes on chromosome 15, specifically in the region 15q11-q13.

PWS is characterized by a wide range of physical, behavioral, and cognitive symptoms. Infants with PWS often have poor muscle tone, difficulty feeding, and delayed development. As they grow older, they may develop an insatiable appetite and become obsessed with food, which can lead to severe obesity and related health problems. Other common symptoms include short stature, hypogonadism, behavioral and cognitive difficulties, and sleep disturbances.

There is currently no cure for PWS, but early diagnosis and intervention can help manage the symptoms and improve quality of life. Treatment typically involves a multidisciplinary approach that includes dietary and exercise interventions, hormone replacement therapy, and behavioral and cognitive therapies.

It is important to note that PWS is a complex disorder, and the symptoms and severity can vary widely from person to person.

Famous People With Prader Willi Syndrome


As Prader-Willi Syndrome is a rare genetic disorder, there aren’t many famous individuals who have been diagnosed with it. However, some people with PWS have achieved notable accomplishments in various fields. Here are a few examples:

1)  Desiree Jennings – A former Washington Redskins cheerleader who was diagnosed with PWS in 2009. She gained media attention for a brief period when she claimed to have developed dystonia, a neurological movement disorder, after receiving a flu shot. Later, it was discovered that her symptoms were not related to the flu shot but were caused by a psychiatric condition.

2.) David Raley – A British man with PWS who became a motivational speaker and author. He has written several books about his experiences with PWS, including “The Angel in the Courtroom,” which tells the story of his successful legal battle to gain access to a life-saving obesity treatment.

3.)  Janne Kouri – An American entrepreneur and philanthropist who was diagnosed with PWS at age 11. Despite the challenges of the disorder, he went on to graduate from the University of Southern California and start his own business. He also founded the NextStep Fitness Foundation, a non-profit organization that provides rehabilitation services to people with spinal cord injuries.

4.) Eddie Albert – Although not confirmed, there have been speculations that the late American actor Eddie Albert might have had PWS based on some of his physical features and reported behaviors.

5.) Ashley Helsing – Ashley is an American woman with PWS who has gained a following on social media for her advocacy and awareness-raising efforts about PWS.

6.) Andrew Bell – Andrew is a British man with PWS who became the first person with the condition to complete a charity skydive in 2018.

7.) Stephen and Rebecca Heston – Stephen and Rebecca are a brother-sister duo with PWS who gained media attention in the US for their advocacy work and public speaking about their experiences with the condition.

8.) Brendan O’Connell – Brendan is an Australian man with PWS who gained national media attention in 2016 for losing over 100kg (220 lbs) through diet and exercise.

It’s worth noting that many individuals with PWS live normal lives and may not be public about their diagnosis.

Related Post : Does Mayim Bialik Have Prader-Willi Syndrome?

ATTENTION :  none of these celebrities have openly admit that he/she is a Prader-Willi Syndrome patient, despite confirming the symptoms by medical practitioners. Hence, we also admit that’s not fully verified. But with their physical look and behavior, you can tell it’s PWS.